Saturday, February 20, 2010

This is a good one really as having a special needs child changes a lot in your life. You seem to have a fight on your hands to get all the necessary help that is required in order to bring my son to the stage of entering mainstream school when a special needs assistant in place. In the area I live there is no autistic team in place so he has only received occupational therapy since his diagnosis. Speech Therapy was withdrawn, as there is no one that can take him on. This meant I had to do a speech and language course in order that I can teach him myself. He also needed to go to playschool with visits from the Early Intervention Team but they are infrequent and would not be of benefit in his development. I applied for home tuition and this has been the only area along with occupational therapy that has been of benefit to him. He will go to playschool in September 05 with a special needs assistant as the relevant people have put the funds in place (this never happened by the way). He was also to receive a home programme with regards to teaching him the approaite skills he needs to get to mainstream school in September 06 (this never happened by the way again). He will receive home tuition again in September 05. With early intervention there should be no reason for him not to enter school at the age he should. This was a hard slog.


More to come . . .
What ever made you aware your son or daughter would be different?

From around 18 months he did not respond in the way that would be age approciate as I already had a daughter and things were not moving in the same direction. My son activities centered on lining up cars, putting things straight and moving drawers into been pulled out exactly even. He had no interest in getting involved with activities I would have assumed normal for his age. He would never respond to his name and seemed to be in a world of his own not wanting any interaction from me or anyone else in his life. By the age of 2 he still had no speech and I was led to believe he may be deaf and in turn carried out a test which told me he had full hearing. I was extremely concerned but no matter how much I tried to get an opinion on him I was always told he was a late developer or he had a speech impairment. He was doing speech therapy between ages 2 to 3 yrs with minimal improvement. During this time he remained in his own world and I I was on the waiting list for a psychologist to see him having got a referral from his G.P. The area health nurse seen him and she was concerned at this stage as he was now 3 and had still not improved in his speech dvelopment. Finally after 7 long months on the waiting list he was finally diagnosed as autistic.



More to come . . .